As a parent, one of the hardest things to see is your child suffering due to illness. How will you handle such a situation? Julianna Snow is dying at the tender age of 5. She has a disease called Charcot-Marie-Tooth (CMT), which has kept her in and out of the hospital for 18 months. Now, the incredibly brave girl has made the decision to choose heaven over the hospital.

In a recent blog post titled “My Daughter Wants to Choose Heaven Over the Hospital,” Julianna’s mom Michelle discussed a conversation with her daughter about what she wanted to do the next time she needed to go to the hospital. Their plan had originally been to take Julianna to the hospital if she got sick again. But since writing the post, the Snows have since come to another conclusion. Their little girl is tired of the hospital, and Julianna’s mom wrote that they will not be taking her to the hospital again.

They are not sure that Julianna Snow could handle another crisis or time in the hospital. She is very sick, and for that reason, her parents chose to grant her wishes. Juliana’s mom feels like bringing her to the hospital again is selfish, and they are going to let their little girl go to heaven just like her request. If Julianna gets sick again, there is a huge possibility that she could end up sedated on a respirator for the rest of her life.

Mom shared the following conversation from The Mighty website,

J: I hate NT [naso-tracheal suction, where a tube was placed down her nose into her lungs without sedation]. I hate the hospital.

M: Right. So if you get sick again, you want to stay home. But you know that probably means you will go to heaven, right?

J: (nods)

M: And it probably means that you will go to heaven by yourself, and mommy will join you later.

J: But I won’t be alone.

M: That’s right. You will not be alone.

J: Do some people go to heaven soon?

M: Yes. We just don’t know when we go to heaven. Sometimes babies go to heaven. Sometimes really old people go to heaven.

J: Will Alex [her 6-year-old brother] go to heaven with me?

M: Probably not. Sometimes people go to heaven together at the same time, but most of the time, they go alone. Does that scare you?

J: No, heaven is good. But I don’t like dying.

M: I know. That’s the hard part. We don’t have to be afraid of dying because we believe we go to heaven. But it’s sad because I will miss you so much.

J: Don’t worry, I won’t be alone.

M: I know. I love you.

J: Madly.

M: Yes, I love you madly. I’m so lucky.

J: And I’m so lucky.

M: Why?

J: Because you love me madly.

This has to be the hardest decision for parents to make. But doctors and nurses who have cared for Julianna supports their decision. Dr. Danny Hsia, Julianna’s pulmonologist, has faith in his patient. Despite her age, she knows what is best.

What are your thoughts on these parents decision?

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